Apabetalone (RVX-208) may become a promising therapy to treat facioscapulohumeral muscular dystrophy (FSHD), according to results announced by the pharmaceutical company Resverlogix. Researchers found this drug acts by switching off the DUX4 gene, which is abnormally active in the muscles of FSHD patients, causing inflammation and...
Starting at the Space Needle in Seattle, our group of cyclists will steadily make their way across the country, covering a grand total of 4,200 miles until they cross the Brooklyn Bridge just 54 days later. The riders will average about 92 miles per day...
October 13, 2016 The Chris Carrino Foundation for FSHD hosted its first annual Casino Night at Mercedes Benz of Massapequa on Saturday, Oct. 8 from 8 p.m. to midnight. The night was filled with games, dancing, special singing performances, silent auction and fundraising. The 200 plus...
We are proud to announce that the Board of Directors of the Chris Carrino Foundation for FSHD has recently awarded a scientific research grant in the amount of $75,625 to Dr. Scott Harper and his team at The Ohio State University. The grant will fund...
The Board of Directors of the Chris Carrino Foundation for FSHD has proudly approved the funding of $107,777 to Peter Jones, PhD and Takako Jones, PhD at the University of Massachusetts for their mouse model research project. It is an expansion of research funded by...
View a video recap of this years amazing event. Thank you all for your donations and support! We look forward to seeing everyone again at next years event!...
Hailing from Canada, Kristina is a passionate and determined young woman living courageously with FSHD. She is a recent university graduate, with a Bachelor’s degree in Fashion Communications from Ryerson University in Toronto. Some of her greatest achievements during her four years include winning a...
This article originally appeared in: April 26, 2014 8:26 PM By NEIL BEST neil.best@newsday.com Chris Carrino has spent more than a decade as the radio voice of the Nets, the key word being "voice." So there was no pressing need for listeners to know what he looked like, let alone...
Watch Chris Carrino talk about FSHD and the foundation in this New 12 New Jersey feature: .embed-container { position: relative; padding-bottom: 56.25%; height: 0; overflow: hidden; max-width: 100%; } .embed-container iframe, .embed-container object, .embed-container embed { position: absolute; top: 0; left: 0; width: 100%; height: 100%;...
Join us for The Chris Carrino Foundation Virtual Gala on October 22, 2020! REGISTER TODAY!