Foundation news
Read more "BUY YOUR TICKETS: The 7th Annual Chris Carrino Foundation Fundraiser Dinner/Dance"
Apabetalone (RVX-208) may become a promising therapy to treat facioscapulohumeral muscular dystrophy (FSHD), according to results announced by the pharmaceutical company Resverlogix. Researchers found this drug acts by switching off the DUX4 gene, which is abnormally active in the muscles of FSHD patients, causing inflammation and muscle atrophy. Apabetalone belongs to a group of …
Read more “FSHD NEWS: Apabetalone May Repress Toxic Gene in Rare Muscular Dystrophy (FSHD)”
Starting at the Space Needle in Seattle, our group of cyclists will steadily make their way across the country, covering a grand total of 4,200 miles until they cross the Brooklyn Bridge just 54 days later. The riders will average about 92 miles per day while traversing 15 states and visiting 46 cities along the way.
October 13, 2016 The Chris Carrino Foundation for FSHD hosted its first annual Casino Night at Mercedes Benz of Massapequa on Saturday, Oct. 8 from 8 p.m. to midnight. The night was filled with games, dancing, special singing performances, silent auction and fundraising. The 200 plus attendees came from near and far to support …
Read more “FOUNDATION NEWS: Casino Night Raises Funds In Support Of Local Family”
We are proud to announce that the Board of Directors of the Chris Carrino Foundation for FSHD has recently awarded a scientific research grant in the amount of $75,625 to Dr. Scott Harper and his team at The Ohio State University. The grant will fund a study titled “Developing a muscle-specific DUX4 inhibition system for …
The Board of Directors of the Chris Carrino Foundation for FSHD has proudly approved the funding of $107,777 to Peter Jones, PhD and Takako Jones, PhD at the University of Massachusetts for their mouse model research project. It is an expansion of research funded by our foundation last year, which was a tremendous success. Below …
View a video recap of this years amazing event. Thank you all for your donations and support! We look forward to seeing everyone again at next years event!
Hailing from Canada, Kristina is a passionate and determined young woman living courageously with FSHD. She is a recent university graduate, with a Bachelor’s degree in Fashion Communications from Ryerson University in Toronto. Some of her greatest achievements during her four years include winning a faculty wide product development competition focusing on the design, branding and marketing of a technology and lifestyle brand of socks with three others students. Their project was also selected to represent Ryerson’s Fashion Communication program at the 2013 International Fashion and Technology Institutes Conference in Los Angeles where it took home first prize.
This article originally appeared in: April 26, 2014 8:26 PM By NEIL BEST neil.best@newsday.com Chris Carrino has spent more than a decade as the radio voice of the Nets, the key word being “voice.” So there was no pressing need for listeners to know what he looked like, let alone what physical challenges he faces. And that was …
Read more “NEWS STORY: Chris Carrino, voice of the Nets, speaks out on disease that afflicts him”