A Voice for Facioscapulohumeral Muscular Dystrophy (FSHD)
The Chris Carrino Foundation for FSHD is a 501(c)(3) non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Muscular Dystrophy (FSHD). We are an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.
We would love to hear from you! If you or someone you know has FSHD, or if you would like to learn more about us, please contact us.
Follow us on
Latest News
Beyond the Paint: Call for a Cure (VIDEO)
02 January, 2020Justin Cohen: Living with FSHD, and efforting to find a cure
30 November, 2019
Proud member of the FSHD Champions
Relentless voice:
The fight of
Chris Carrino
Take a small glimpse into the life of Brooklyn Nets announcer Chris Carrino, as he continues his daily battle with Facioscapulohumeral Muscular Dystrophy (FSHD).
@CarrinoFSHD Latest Tweets
I have a type of muscular dystrophy known as #FSHD. This #RareDiseaseDay I thank the amazing FSHD community, @FSHDSociety, @CarrinoFSHD and many others for all of their support, we can only overcome this together. pic.twitter.com/KAjliioNL9
Grant Funding to Date
748233
Dollars donated
Our Partners
OUR MISSION
The Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.
GET INVOLVED
The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate all of your donations and support!
SUBSCRIBE
Sign up today to receive our email newsletter which will keep you up to date on all that’s new in the field of FSHD.