A Voice for Facioscapulohumeral Muscular Dystrophy (FSHD)
The Chris Carrino Foundation for FSHD is a 501(c)(3) non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Muscular Dystrophy (FSHD). We are an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.
We would love to hear from you! If you or someone you know has FSHD, or if you would like to learn more about us, please contact us.
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Latest News
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Understanding the role of RNA quality control in FSHD
15 March, 2021 -
Beyond the Paint: Call for a Cure (VIDEO)
02 January, 2020
Proud member of the FSHD Champions
Relentless voice:
The fight of
Chris Carrino
Take a small glimpse into the life of Brooklyn Nets announcer Chris Carrino, as he continues his daily battle with Facioscapulohumeral Muscular Dystrophy (FSHD).
@CarrinoFSHD Latest Tweets
Today we announced ARO-DUX4, $ARWR’s first muscle targeted investigational #RNAi therapeutic candidate to use our proprietary TRiM™ platform, as a potential treatment for patients w/ facioscapulohumeral muscular dystrophy (#FSHD). Read our press release: https://t.co/MoxhpItxIY pic.twitter.com/Rl76LQK51h
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OUR MISSION
The Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.
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The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate all of your donations and support!
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