A Voice for Facioscapulohumeral Muscular Dystrophy (FSHD)
The Chris Carrino Foundation for FSHD is a 501(c)(3) non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Muscular Dystrophy (FSHD). We are an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.
We would love to hear from you! If you or someone you know has FSHD, or if you would like to learn more about us, please contact us.
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Latest News
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First Participant With FSHD Dosed in Phase 3 Study of Losmapimod
01 August, 2022 -
Lululemon Founder Commits $100 Million to Find Cure for FSHD
11 April, 2022
Proud member of the FSHD Champions
Relentless voice:
The fight of
Chris Carrino
Take a small glimpse into the life of Brooklyn Nets announcer Chris Carrino, as he continues his daily battle with Facioscapulohumeral Muscular Dystrophy (FSHD).
@CarrinoFSHD Latest Tweets
Brooklyn Nets' radio announcer Chris Carrino honored by NBA https://t.co/MFRVfEYcrm pic.twitter.com/cZ1VfgMZjU
Grant Funding to Date
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Dollars donated
Our Partners
OUR MISSION
The Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.
GET INVOLVED
The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate all of your donations and support!
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