FSHD treatment del-brax (formerly AOC 1020) aids muscle function
Read original article here. by Margarida Maia, PhD | June 20, 2024 AOC 1020, an investigational treatment by Avidity Biosciences that’s now called del...
30 June, 2024
A Voice for Facioscapulohumeral Muscular Dystrophy (FSHD)
The Chris Carrino Foundation for FSHD is a 501(c)(3) non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Muscular Dystrophy (FSHD). We are an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.
We would love to hear from you! If you or someone you know has FSHD, or if you would like to learn more about us, please contact us.
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Latest News
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Chris Carrino heads to Capitol Hill to advocate for FSHD
On May 8, 2024, Chris and Laura Carrino joined with members of the FSHD Society for a trip to Capitol Hill to meet with Senators, Congressman, and sta...
05 June, 2024 -
WDR5 is required for DUX4 expression and its pathological effects in FSHD muscular dystrophy
Facioscapulohumeral muscular dystrophy (FSHD) is one of the most prevalent neuromuscular disorders. The disease is linked to copy number reduction and...
12 April, 2023 -
Brooklyn Nets’ radio announcer Chris Carrino honored by NBA
Read original article and view video content here. Brooklyn Nets’ radio announcer Chris Carrino is being honored by the NBA for both his decades...
12 February, 2023
Proud member of the FSHD Champions
Relentless voice:
The fight of
Chris Carrino
Take a small glimpse into the life of Brooklyn Nets announcer Chris Carrino, as he continues his daily battle with Facioscapulohumeral Muscular Dystrophy (FSHD).
Justin’s Blog
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Avidity Shares Promising Interim Data from its FORTITUDE Trial
By Justin Cohen, PhD Avidity Biosciences recently announced exciting interim results from their randomized, double-blind, placebo-controlled Phase 1/2...
12 July, 2024 -
Hope for the Future of Muscular Dystrophy Treatment: Kate Therapeutics Harnesses their myoAAV Technology for FSHD
By Justin Cohen, PhD Kate Therapeutics, a San Diego base biotechnology company has announced funding to advance their muscle and cardiovascular diseas...
08 July, 2023 -
Breaking Barriers in the Sky: The Future of Air-Travel for Wheelchair Users
By Justin Cohen, PhD Air-travel for wheelchair users come with a unique set of challenges that cause many to forgo the plane altogether. This could al...
30 June, 2023 -
Justin Cohen: Living with FSHD, and efforting to find a cure
Justin Cohen is a remarkable young researcher, living with FSHD, and efforting to find a cure for the disease. The Carrino Foundation is proud to make...
30 November, 2019
@CarrinoFSHD Latest Tweets
"Sometimes you have a plan to get somewhere – and then something will happen that makes you have to drastically change that plan."
Muscular Dystrophy isn't slowing @ChrisCarrino's pursuit of new sports media opportunities.
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The Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.
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The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate your donations and support!