The Chris Carrino Foundation Logo

The Chris Carrino Foundation for FSHD  is a 501(c)(3) non-profit organization dedicated to the effort of eradicating the life-altering effects of Facioscapulohumeral muscular dystrophy (FSHD). We are an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.


Although FSHD is now the most common form of muscular dystrophy, FSHD research has been dramatically under funded by major muscular dystrophy organizations and the National Institutes of Health for decades. The Chris Carrino Foundation for FSHD is the only organization in the New York area, and only one of three in the nation, specifically focused on FSHD.


FSHD usually strikes during the teenage years. By age twenty, 95% of individuals with FSHD will have symptoms related to muscle weakening. At the present time, FSHD patients are faced with the harsh reality that they are living with a progressive disease for which there is no treatment and no cure. Thousands of patients are devastated by the unrelenting effects of muscle deterioration and disability. Thousands of lives are forever changed. Thousands of dreams are forever shattered.


Please help us keep those dreams alive.



The Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.



The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate all of your donations and support!

Join us for The Chris Carrino Foundation Virtual Gala on October 22, 2020!  REGISTER TODAY!