Every Summer since 2011, our gala has helped us raise over a million dollars for FSHD research. Research that has had a major influence on advancing the search for a treatment and cure for FSHD. Sadly, we are not able to gather in person this...
https://youtu.be/LXr1L4NOmos ...
There are approximately 15 steps that Chris Carrino will need to navigate in order to reach his broadcast position inside Wells Fargo Center. It may not seem all that daunting, but a small flight of stairs is physically challenging and potentially dangerous for someone living...
Be sure to mark your calendars now! Our ninth annual dinner dance will take place on Thursday, July 18, 2019, at Russo's on the Bay in Howard Beach, NY. Details and ticket information will be available soon. Hope to see you there!...
Bruce Beck of NBC 4 provides coverage of the C2C4FSHD bike tour....
Frank Carbone’s energy is infectious. Starting in Seattle and for the better part of two months, he led a group of cyclists across the country. CBS2’s Steve Overmyer caught up with him during a two-minute pit stop in Fort Lee before entering their final leg...
A 4,200-mile journey through 15 states that began in Seattle in May came to an end in Brooklyn Wednesday afternoon, as cyclists pedaled their way to the Barclays Center and celebrated the funding and awareness they raised for facioscapulohumeral muscular dystrophy....
Post by Chris Carrino June 20th is World FSHD Day. A day of awareness for FSHD, to show we are united for a cure. However, for those of us affected by this disease, June 20th is simply known as - Tuesday. There isn’t a moment of every day that...
Fastfoward to the 18:45 minute mark to hear Chris' interview....
This article originally appeared on app.com Jerry Carino , @njhoopshaven Published 5:02 a.m. ET May 18, 2017 | Updated 4:20 p.m. ET May 20, 2017 As the new co-director of a highly successful sports broadcasting camp for teens, Marlboro's Chris Carrino draws on...
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