Post by Chris Carrino June 20th is World FSHD Day. A day of awareness for FSHD, to show we are united for a cure. However, for those of us affected by this disease, June 20th is simply known as – Tuesday. There isn’t a moment of every day that I’m not acutely aware …
Fastfoward to the 18:45 minute mark to hear Chris’ interview.
This article originally appeared on app.com Jerry Carino , @njhoopshaven Published 5:02 a.m. ET May 18, 2017 | Updated 4:20 p.m. ET May 20, 2017 As the new co-director of a highly successful sports broadcasting camp for teens, Marlboro’s Chris Carrino draws on experiences beyond the basketball court. A few years …
Read more "BUY YOUR TICKETS: The 7th Annual Chris Carrino Foundation Fundraiser Dinner/Dance"
Starting at the Space Needle in Seattle, our group of cyclists will steadily make their way across the country, covering a grand total of 4,200 miles until they cross the Brooklyn Bridge just 54 days later. The riders will average about 92 miles per day while traversing 15 states and visiting 46 cities along the way.
October 13, 2016 The Chris Carrino Foundation for FSHD hosted its first annual Casino Night at Mercedes Benz of Massapequa on Saturday, Oct. 8 from 8 p.m. to midnight. The night was filled with games, dancing, special singing performances, silent auction and fundraising. The 200 plus attendees came from near and far to support …
Read more “FOUNDATION NEWS: Casino Night Raises Funds In Support Of Local Family”
We are proud to announce that the Board of Directors of the Chris Carrino Foundation for FSHD has recently awarded a scientific research grant in the amount of $75,625 to Dr. Scott Harper and his team at The Ohio State University. The grant will fund a study titled “Developing a muscle-specific DUX4 inhibition system for …
View a video recap of this years amazing event. Thank you all for your donations and support! We look forward to seeing everyone again at next years event!
Hailing from Canada, Kristina is a passionate and determined young woman living courageously with FSHD. She is a recent university graduate, with a Bachelor’s degree in Fashion Communications from Ryerson University in Toronto. Some of her greatest achievements during her four years include winning a faculty wide product development competition focusing on the design, branding and marketing of a technology and lifestyle brand of socks with three others students. Their project was also selected to represent Ryerson’s Fashion Communication program at the 2013 International Fashion and Technology Institutes Conference in Los Angeles where it took home first prize.