15 Jun AUDIO: FSH Society Radio live 2A- Chris Carrino, voice of the Brooklyn Nets & FSHD
Fastfoward to the 18:45 minute mark to hear Chris' interview....
24 May Nets Broadcaster Is A Mentor With A Mission
This article originally appeared on app.com Jerry Carino , @njhoopshaven Published 5:02 a.m. ET May 18, 2017 | Updated 4:20 p.m. ET May 20, 2017 As the new co-director of a highly successful sports broadcasting camp for teens, Marlboro's Chris Carrino draws on...
13 May FSHD NEWS: Resolaris Improves Muscle Strength, Quality of Life in FSHD Patients, Study Finds
This story was originally published on musculardystrophynews.com on April 27, 2017. Resolaris, a protein therapy developed for rare muscle diseases by aTyr Pharma, improved muscle strength and quality of life in a small study of patients with early onset facioscapulohumeral muscular dystrophy (FSHD). These findings, as well as others...
26 Apr BUY YOUR TICKETS: The 7th Annual Chris Carrino Foundation Fundraiser Dinner/Dance
[vc_row row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern" css_animation=""][vc_column][vc_column_text] Our seventh annual dinner dance will take place on Thursday, July 20, 2017 Russo's On The Bay 162-45 Cross Bay Blvd Howard Beach, NY 11414 Cocktail hour from 6:00 to 7:30 pm / Dinner at 7:30 pm Top Shelf Open Bar, DJ, Dancing, Live...
22 Apr FSHD NEWS: Apabetalone May Repress Toxic Gene in Rare Muscular Dystrophy (FSHD)
Apabetalone (RVX-208) may become a promising therapy to treat facioscapulohumeral muscular dystrophy (FSHD), according to results announced by the pharmaceutical company Resverlogix. Researchers found this drug acts by switching off the DUX4 gene, which is abnormally active in the muscles of FSHD patients, causing inflammation and...
28 Feb Coast 2 Coast 4 FSHD – An Epic Fund-Raising and Awareness Bicycle Journey
Starting at the Space Needle in Seattle, our group of cyclists will steadily make their way across the country, covering a grand total of 4,200 miles until they cross the Brooklyn Bridge just 54 days later. The riders will average about 92 miles per day...
06 Nov FOUNDATION NEWS: Casino Night Raises Funds In Support Of Local Family
October 13, 2016 The Chris Carrino Foundation for FSHD hosted its first annual Casino Night at Mercedes Benz of Massapequa on Saturday, Oct. 8 from 8 p.m. to midnight. The night was filled with games, dancing, special singing performances, silent auction and fundraising. The 200 plus...
27 Jan FSHD NEWS: How CRISPR could lead to a cure for muscular dystrophy
Your donations have played a part in this important discovery for a potential treatment and cure for FSHD. The Chris Carrino Foundation for FSHD is acknowledged in the official paper for this research. Your continued support is crucial to advance these findings. Thanks to Dr....
21 Nov PHOTOS: 5th Annual Chris Carrino Foundation Dinner Gala Fundraiser
Thank you to all who donated and participated in this years event! You all have helped to make a difference in our fight to find a cure. We had a great time with all of you and look forward to doing it again next year!...