This story was originally published on musculardystrophynews.com on April 27, 2017. Resolaris, a protein therapy developed for rare muscle diseases by aTyr Pharma, improved muscle strength and quality of life in a small study of patients with early onset facioscapulohumeral muscular dystrophy (FSHD). These findings, as well as others...
[vc_row row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern" css_animation=""][vc_column][vc_column_text] Our seventh annual dinner dance will take place on Thursday, July 20, 2017 Russo's On The Bay 162-45 Cross Bay Blvd Howard Beach, NY 11414 Cocktail hour from 6:00 to 7:30 pm / Dinner at 7:30 pm Top Shelf Open Bar, DJ, Dancing, Live...
Apabetalone (RVX-208) may become a promising therapy to treat facioscapulohumeral muscular dystrophy (FSHD), according to results announced by the pharmaceutical company Resverlogix. Researchers found this drug acts by switching off the DUX4 gene, which is abnormally active in the muscles of FSHD patients, causing inflammation and...
Starting at the Space Needle in Seattle, our group of cyclists will steadily make their way across the country, covering a grand total of 4,200 miles until they cross the Brooklyn Bridge just 54 days later. The riders will average about 92 miles per day...
October 13, 2016 The Chris Carrino Foundation for FSHD hosted its first annual Casino Night at Mercedes Benz of Massapequa on Saturday, Oct. 8 from 8 p.m. to midnight. The night was filled with games, dancing, special singing performances, silent auction and fundraising. The 200 plus...
Your donations have played a part in this important discovery for a potential treatment and cure for FSHD. The Chris Carrino Foundation for FSHD is acknowledged in the official paper for this research. Your continued support is crucial to advance these findings. Thanks to Dr....
Thank you to all who donated and participated in this years event! You all have helped to make a difference in our fight to find a cure. We had a great time with all of you and look forward to doing it again next year!...
The Chris Carrino Foundation for FSHD is partnering with St. Louis University on a social media campaign called DanceNDonate. All the proceeds raised will go directly to drug therapy research for FSHD at St. Louis University. Please join this race by donating, and have fun...
A heartfelt thanks to everyone who made our February Disco Party a success. With the help of our generous sponsors from Bay Ridge Toyota and Manhattan Honda as well as all of you party goers, we raised over $25,000 for FSHD research. A great time was...
Join us for The Chris Carrino Foundation Virtual Gala on October 22, 2020! REGISTER TODAY!