Post by Chris Carrino June 20th is World FSHD Day. A day of awareness for FSHD, to show we are united for a cure. However, for those of us affected by this disease, June 20th is simply known as – Tuesday. There isn’t a moment of every day that I’m not acutely aware …
Fastfoward to the 18:45 minute mark to hear Chris’ interview.
This article originally appeared on app.com Jerry Carino , @njhoopshaven Published 5:02 a.m. ET May 18, 2017 | Updated 4:20 p.m. ET May 20, 2017 As the new co-director of a highly successful sports broadcasting camp for teens, Marlboro’s Chris Carrino draws on experiences beyond the basketball court. A few years …
This story was originally published on musculardystrophynews.com on April 27, 2017. Resolaris, a protein therapy developed for rare muscle diseases by aTyr Pharma, improved muscle strength and quality of life in a small study of patients with early onset facioscapulohumeral muscular dystrophy (FSHD). These findings, as well as others regarding the effect of Resolaris in patients with …
Read more "BUY YOUR TICKETS: The 7th Annual Chris Carrino Foundation Fundraiser Dinner/Dance"
Apabetalone (RVX-208) may become a promising therapy to treat facioscapulohumeral muscular dystrophy (FSHD), according to results announced by the pharmaceutical company Resverlogix. Researchers found this drug acts by switching off the DUX4 gene, which is abnormally active in the muscles of FSHD patients, causing inflammation and muscle atrophy. Apabetalone belongs to a group of …
Read more “FSHD NEWS: Apabetalone May Repress Toxic Gene in Rare Muscular Dystrophy (FSHD)”
Starting at the Space Needle in Seattle, our group of cyclists will steadily make their way across the country, covering a grand total of 4,200 miles until they cross the Brooklyn Bridge just 54 days later. The riders will average about 92 miles per day while traversing 15 states and visiting 46 cities along the way.
October 13, 2016 The Chris Carrino Foundation for FSHD hosted its first annual Casino Night at Mercedes Benz of Massapequa on Saturday, Oct. 8 from 8 p.m. to midnight. The night was filled with games, dancing, special singing performances, silent auction and fundraising. The 200 plus attendees came from near and far to support …
Read more “FOUNDATION NEWS: Casino Night Raises Funds In Support Of Local Family”
Your donations have played a part in this important discovery for a potential treatment and cure for FSHD. The Chris Carrino Foundation for FSHD is acknowledged in the official paper for this research. Your continued support is crucial to advance these findings. Thanks to Dr. Jones and his team for their dedication. By Dominic …
Read more “FSHD NEWS: How CRISPR could lead to a cure for muscular dystrophy”