News & Events – page 3

25 Nov

FSHD NEWS: Resolaris Improved Muscle Strength of Nearly Two-thirds of FSHD Patients, Phase 1/2 Trial Shows

Article originally appeared on musculardystrophynews.com, October 10, 2017. Resolaris (ATYR1940) improved the muscle strength of nearly two-thirds of adolescents and young adults with early-onset facioscapulohumeral muscular dystrophy (FSHD), according to final results of a Phase 1/2 clinical trial. The therapy’s maker, aTyr Pharma, presented the findings at the 22nd International Annual Congress of the World Muscle Society...

04:04 / FSHD News / News

07 Aug

VIDEO: NBC Sports Desk Report on C2C4FSHD

Bruce Beck of NBC 4 provides coverage of the C2C4FSHD bike tour....

03:55 / Foundation News

30 Jul

VIDEO: Cyclists Cross The Country For A Cure For Muscular Dystrophy

Frank Carbone’s energy is infectious. Starting in Seattle and for the better part of two months, he led a group of cyclists across the country. CBS2’s Steve Overmyer caught up with him during a two-minute pit stop in Fort Lee before entering their final leg...

04:31 / Foundation News / News

30 Jul

VIDEO: Bike Journey Raises Money, Awareness For Muscular Dystrophy

A 4,200-mile journey through 15 states that began in Seattle in May came to an end in Brooklyn Wednesday afternoon, as cyclists pedaled their way to the Barclays Center and celebrated the funding and awareness they raised for facioscapulohumeral muscular dystrophy....

04:23 / Foundation News / News

17 Jun

June 20th is World FSHD Day

Post by Chris Carrino June 20th is World FSHD Day. A day of awareness for FSHD, to show we are united for a cure. However, for those of us affected by this disease, June 20th is simply known as - Tuesday. There isn’t a moment of every day that...

17:41 / Foundation News / FSHD News

15 Jun

AUDIO: FSH Society Radio live 2A- Chris Carrino, voice of the Brooklyn Nets & FSHD

Fastfoward to the 18:45 minute mark to hear Chris' interview....

04:27 / Foundation News

24 May

Nets Broadcaster Is A Mentor With A Mission

This article originally appeared on app.com Jerry Carino , @njhoopshaven Published 5:02 a.m. ET May 18, 2017 | Updated 4:20 p.m. ET May 20, 2017 As the new co-director of a highly successful sports broadcasting camp for teens, Marlboro's Chris Carrino draws on...

05:27 / Foundation News

13 May

FSHD NEWS: Resolaris Improves Muscle Strength, Quality of Life in FSHD Patients, Study Finds

This story was originally published on musculardystrophynews.com on April 27, 2017. Resolaris, a protein therapy developed for rare muscle diseases by aTyr Pharma, improved muscle strength and quality of life in a small study of patients with early onset facioscapulohumeral muscular dystrophy (FSHD). These findings, as well as others...

21:46 / FSHD News / News

26 Apr

BUY YOUR TICKETS: The 7th Annual Chris Carrino Foundation Fundraiser Dinner/Dance

[vc_row row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern" css_animation=""][vc_column][vc_column_text] Our seventh annual dinner dance will take place on Thursday, July 20, 2017 Russo's On The Bay 162-45 Cross Bay Blvd Howard Beach, NY 11414 Cocktail hour from 6:00 to 7:30 pm / Dinner at 7:30 pm Top Shelf Open Bar, DJ, Dancing, Live...

03:35 / Foundation News / Upcoming Events

22 Apr

FSHD NEWS: Apabetalone May Repress Toxic Gene in Rare Muscular Dystrophy (FSHD)

Apabetalone (RVX-208) may become a promising therapy to treat facioscapulohumeral muscular dystrophy (FSHD), according to results announced by the pharmaceutical company Resverlogix. Researchers found this drug acts by switching off the DUX4 gene, which is abnormally active in the muscles of FSHD patients, causing inflammation and...

02:33 / FSHD News