Would You Like to Help Us Raise Donations for FSHD Research?

The Chris Carrino Foundation for FSHD recently created a fundraising page through FirstGiving.com.  FirstGiving offers tools and expertise to connect with friends and family and make fundraising less overwhelming – and even fun. Easy to use online tools for creating a personalized fundraising page in just minutes, allowing you to meet and exceed your fundraising …

VOLUNTEERS NEEDED FOR FSHD RESEARCH

The Chris Carrino Foundation for FSHD, together with researchers at State University of New York at Stony Brook and the New York Institute of Technology’s College of Osteopathic Medicine, is seeking volunteers for a collaborative research study into genetic factors determining FSHD severity.  FSHD severity varies significantly, even within families sharing the same common genetic …

PRESS RELEASE: The Chris Carrino Foundation for FSHD Extends Funding of Genetic Research Project

September 19, 2011 Massapequa Park, New York The Chris Carrino Foundation for FSHD announced the extension of a scientific research project directed towards understanding the genetic basis of variable severity in FSHD (Facioscapulohumeral Muscular Dystrophy). The study, entitled, “Uncovering the Genetic Basis of Variable Severity in FSHD” is headed by Dr. Eli Hatchwell, formerly Director …

STORY: NBA Announcer Chris Carrino: My Battle Against FSHD Muscular Dystrophy

Yahoo! Sports | The Post Game. Friday, May 27, 2011 4:11 pm Written by: Chris Carrino One of my earliest broadcasting memories is calling the World Series in 1980. It wasn’t for any network, just my tape recorder, while watching it on the TV in my parents’ bedroom. I was 10 years old. No one …

ESPN.com: Chris Carrino talks about life with MD

Updated: April 13, 2011 Associated Press NEWARK, N.J. — New Jersey Nets radio voice Chris Carrino has been living with a secret for almost two decades. The 40-year-old, who has spent the past decade describing the franchise’s run at NBA titles early in the decade to the misery of recent losing seasons, has done it …

Star-Ledger Article: D’Alessandro: Battling muscular dystrophy, Nets radio voice Chris Carrino makes the biggest call of his life

By Dave D’Alessandro/Star-Ledger Columnist Published: Tuesday, April 12, 2011 The first time he was aware that something was wrong was when he was in his late teens, and being someone who doesn’t complain about anything — that should be on his business card, by the way — Chris Carrino decided to keep it to himself.