SOUTH SAN FRANCISCO, Calif.–(BUSINESS WIRE)–Epicrispr Biotechnologies, a clinical-stage company pioneering gene-modulating therapies, today announced that the first patient has been dosed in its global first-in-human clinical trial of EPI-321, an investigational, one-time epigenetic editing therapy for facioscapulohumeral muscular dystrophy (FSHD). FSHD is a progressive genetic disease that affects approximately 1 in 8,000 individuals worldwide, …
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On May 8, 2024, Chris and Laura Carrino joined with members of the FSHD Society for a trip to Capitol Hill to meet with Senators, Congressman, and staffers in an effort to advocate for FSHD. With promising clinical trials underway, there is an urgency to introduce these lawmakers to FSHD patients and build relationships that …
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Read original article and view video content here. Brooklyn Nets’ radio announcer Chris Carrino is being honored by the NBA for both his decades of work and the obstacles he has overcome. After more than 20 years as the radio play-by-play voice of the Nets, Carrino has been recognized by the NBA with “The Values …
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This article originally appeared on netsdaily.com. The NBA is honoring Chris Carrino, the play-by-play announcer, with the prestigious NBA Values of the Game Award this year, the Nets and the league reported Tuesday. The award recognizes an individual at an NBA team who exemplifies the values of the league in their community. The NBA is also honoring …
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https://youtu.be/LXr1L4NOmos
There are approximately 15 steps that Chris Carrino will need to navigate in order to reach his broadcast position inside Wells Fargo Center. It may not seem all that daunting, but a small flight of stairs is physically challenging and potentially dangerous for someone living with muscular dystrophy.
Be sure to mark your calendars now! Our ninth annual dinner dance will take place on Thursday, July 18, 2019, at Russo’s on the Bay in Howard Beach, NY. Details and ticket information will be available soon. Hope to see you there!
Bruce Beck of NBC 4 provides coverage of the C2C4FSHD bike tour.
Frank Carbone’s energy is infectious. Starting in Seattle and for the better part of two months, he led a group of cyclists across the country. CBS2’s Steve Overmyer caught up with him during a two-minute pit stop in Fort Lee before entering their final leg through New York City. “We’re home!” Carbone said. “Fifty-four days on the road!”
A 4,200-mile journey through 15 states that began in Seattle in May came to an end in Brooklyn Wednesday afternoon, as cyclists pedaled their way to the Barclays Center and celebrated the funding and awareness they raised for facioscapulohumeral muscular dystrophy.
