Special Announcements made by the Foundation
Starting at the Space Needle in Seattle, our group of cyclists will steadily make their way across the country, covering a grand total of 4,200 miles until they cross the Brooklyn Bridge just 54 days later. The riders will average about 92 miles per day while traversing 15 states and visiting 46 cities along the way.
Hailing from Canada, Kristina is a passionate and determined young woman living courageously with FSHD. She is a recent university graduate, with a Bachelor’s degree in Fashion Communications from Ryerson University in Toronto. Some of her greatest achievements during her four years include winning a faculty wide product development competition focusing on the design, branding and marketing of a technology and lifestyle brand of socks with three others students. Their project was also selected to represent Ryerson’s Fashion Communication program at the 2013 International Fashion and Technology Institutes Conference in Los Angeles where it took home first prize.
The Chris Carrino Foundation for FSHD recently created a fundraising page through FirstGiving.com. FirstGiving offers tools and expertise to connect with friends and family and make fundraising less overwhelming – and even fun. Easy to use online tools for creating a personalized fundraising page in just minutes, allowing you to meet and exceed your fundraising …
Read more “Would You Like to Help Us Raise Donations for FSHD Research?”
The Chris Carrino Foundation for FSHD, together with researchers at State University of New York at Stony Brook and the New York Institute of Technology’s College of Osteopathic Medicine, is seeking volunteers for a collaborative research study into genetic factors determining FSHD severity. FSHD severity varies significantly, even within families sharing the same common genetic …