PHOTOS: 5th Annual Chris Carrino Foundation Dinner Gala Fundraiser

Thank you to all who donated and participated in this years event!  You all have helped to make a difference in our fight to find a cure.  We had a great time with all of you and look forward to doing it again next year!  But until then, here are photos from this years event …

FUNDRAISER: Dance N Donate for FSHD with The Chris Carrino Foundation!

The Chris Carrino Foundation for FSHD is partnering with St. Louis University on a social media campaign called DanceNDonate.  All the proceeds raised will go directly to drug therapy research for FSHD at St. Louis University.  Please join this race by donating, and have fun showing off your best dance moves at the same time. …

PHOTO GALLERY: The Chris Carrino Foundation 2015 Valentine's Disco Party

A heartfelt thanks to everyone who made our February Disco Party a success. With the help of our generous sponsors from Bay Ridge Toyota and Manhattan Honda as well as all of you party goers, we raised over $25,000 for FSHD research. A great time was had by all who attended. Thanks to Joey G. …

Chris Carrino Foundation Board Awards Research Grant to Dr. Scott Harper at The Ohio State University

We are proud to announce that the Board of Directors of the Chris Carrino Foundation for FSHD has recently awarded a scientific research grant in the amount of $75,625 to Dr. Scott Harper and his team at The Ohio State University. The grant will fund a study titled “Developing a muscle-specific DUX4 inhibition system for …

The Chris Carrino Foundation Board Approves Continued Funding for UMass FSHD Research Project

The Board of Directors of the Chris Carrino Foundation for FSHD has proudly approved the funding of $107,777 to Peter Jones, PhD and Takako Jones, PhD at the University of Massachusetts for their mouse model research project. It is an expansion of research funded by our foundation last year, which was a tremendous success. Below …

The 2014 Chris Carrino Foundation Scholarship Recipient – Kristina McMullin

Hailing from Canada, Kristina is a passionate and determined young woman living courageously with FSHD. She is a recent university graduate, with a Bachelor’s degree in Fashion Communications from Ryerson University in Toronto. Some of her greatest achievements during her four years include winning a faculty wide product development competition focusing on the design, branding and marketing of a technology and lifestyle brand of socks with three others students. Their project was also selected to represent Ryerson’s Fashion Communication program at the 2013 International Fashion and Technology Institutes Conference in Los Angeles where it took home first prize.

NEWS STORY: Chris Carrino, voice of the Nets, speaks out on disease that afflicts him

This article originally appeared in: April 26, 2014 8:26 PM By NEIL BEST neil.best@newsday.com Chris Carrino has spent more than a decade as the radio voice of the Nets, the key word being “voice.” So there was no pressing need for listeners to know what he looked like, let alone what physical challenges he faces. And that was …