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What Is FSHD?

Not all forms of muscular dystrophy are the same.

Who Is Chris Carrino?

Chris Carrino has dedicated his time off the court to help bring awareness to this important cause called Facioscapulohumeral Muscular Dystrophy (FSHD). With your help, he hopes to continue to help raise awareness and push forward towards finding a cure.

Learn His Story

How can I help?

Whether it's donations or time volunteered, we appreciate your help!

Ways You Can Help

A Voice for Facioscapulohumeral Muscular Dystrophy (FSHD)

The Chris Carrino Foundation for FSHD is a 501(c)(3) non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Muscular Dystrophy (FSHD). We are an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.

We would love to hear from you! If you or someone you know has FSHD, or if you would like to learn more about us, please contact us.

Relentless voice:

The fight of

Chris Carrino

by Yahoo Sports Videos 15:26 mins

Take a small glimpse into the life of Brooklyn Nets announcer Chris Carrino, as he continues his daily battle with Facioscapulohumeral Muscular Dystrophy (FSHD).

Latest News

Epicrispr Biotechnologies Doses First Patient in First-in-Human Clinical Trial of EPI-321 for FSHD
17 August, 2025
FDA Accelerated Approval Open for FSHD Agent Del-Brax, With Newly Initiated Phase 3 Study to Confirm Efficacy
25 July, 2025
Avidity Shares Promising Interim Data from its FORTITUDE Trial
12 July, 2024
FSHD treatment del-brax (formerly AOC 1020) aids muscle function
30 June, 2024

@CC_FSHD Latest Tweets

Our Impact

500000

Donated dollars to date

Grants funded

Scholarships awarded

Our Sponsors

OUR MISSION

The Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.

Learn More

GET INVOLVED

The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate all of your donations and support!

Ways To Help