DUX in a row: Exploring genetic repression across the D4Z4 repeat
By J Waters In the late 19th century, two French neurologists described a new form of muscular dystrophy which they named for the specific muscles it ...
02 September, 2025
A Voice for Facioscapulohumeral Muscular Dystrophy (FSHD)
The Chris Carrino Foundation for FSHD is a 501(c)(3) non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Muscular Dystrophy (FSHD). We are an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.
We would love to hear from you! If you or someone you know has FSHD, or if you would like to learn more about us, please contact us.
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Epicrispr Biotechnologies Doses First Patient in First-in-Human Clinical Trial of EPI-321 for FSHD
SOUTH SAN FRANCISCO, Calif.–(BUSINESS WIRE)–Epicrispr Biotechnologies, a clinical-stage company pioneering gene-modulating therapie...
17 August, 2025 -
FDA Accelerated Approval Open for FSHD Agent Del-Brax, With Newly Initiated Phase 3 Study to Confirm Efficacy
In a number of company updates, Avidity Biosciences announced the FDA’s openness for an accelerated approval for its investigational agent delp...
25 July, 2025 -
FSHD treatment del-brax (formerly AOC 1020) aids muscle function
by Margarida Maia, PhD | June 20, 2024 AOC 1020, an investigational treatment by Avidity Biosciences that’s now called delpacibart braxlosiran,...
30 June, 2024
Proud member of the FSHD Champions
Relentless voice:
The fight of
Chris Carrino
Take a small glimpse into the life of Brooklyn Nets announcer Chris Carrino, as he continues his daily battle with Facioscapulohumeral Muscular Dystrophy (FSHD).
Justin’s Blog
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Avidity Shares Promising Interim Data from its FORTITUDE Trial
By Justin Cohen, PhD Avidity Biosciences recently announced exciting interim results from their randomized, double-blind, placebo-controlled Phase 1/2...
12 July, 2024 -
Hope for the Future of Muscular Dystrophy Treatment: Kate Therapeutics Harnesses their myoAAV Technology for FSHD
By Justin Cohen, PhD Kate Therapeutics, a San Diego base biotechnology company has announced funding to advance their muscle and cardiovascular diseas...
08 July, 2023 -
Breaking Barriers in the Sky: The Future of Air-Travel for Wheelchair Users
By Justin Cohen, PhD Air-travel for wheelchair users come with a unique set of challenges that cause many to forgo the plane altogether. This could al...
30 June, 2023 -
Justin Cohen: Living with FSHD, and efforting to find a cure
Justin Cohen is a remarkable young researcher, living with FSHD, and efforting to find a cure for the disease. The Carrino Foundation is proud to make...
30 November, 2019
@CarrinoFSHD Latest Tweets
"Sometimes you have a plan to get somewhere – and then something will happen that makes you have to drastically change that plan."
Muscular Dystrophy isn't slowing @ChrisCarrino's pursuit of new sports media opportunities.
📝 @derekfutterman
https://t.co/my2ikLf5N4 pic.twitter.com/aWgWAJ4zyx
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OUR MISSION
The Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.
GET INVOLVED
The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate your donations and support!