19 Sep VOLUNTEERS NEEDED FOR FSHD RESEARCH

The Chris Carrino Foundation for FSHD, together with researchers at State University of New York at Stony Brook and the New York Institute of Technology's College of Osteopathic Medicine, is seeking volunteers for a collaborative research study into genetic factors determining FSHD severity.  FSHD severity...

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19 Sep PRESS RELEASE: The Chris Carrino Foundation for FSHD Extends Funding of Genetic Research Project

September 19, 2011 Massapequa Park, New York The Chris Carrino Foundation for FSHD announced the extension of a scientific research project directed towards understanding the genetic basis of variable severity in FSHD (Facioscapulohumeral Muscular Dystrophy). The study, entitled, "Uncovering the Genetic Basis of Variable Severity in FSHD"...

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15 Apr ESPN.com: Chris Carrino talks about life with MD

Updated: April 13, 2011 Associated Press NEWARK, N.J. -- New Jersey Nets radio voice Chris Carrino has been living with a secret for almost two decades. The 40-year-old, who has spent the past decade describing the franchise's run at NBA titles early in the decade to the misery of recent losing seasons, has done it with his body being gradually attacked by a form of muscular dystrophy.
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12 Apr Star-Ledger Article: D’Alessandro: Battling muscular dystrophy, Nets radio voice Chris Carrino makes the biggest call of his life

By Dave D'Alessandro/Star-Ledger Columnist Published: Tuesday, April 12, 2011 The first time he was aware that something was wrong was when he was in his late teens, and being someone who doesn't complain about anything — that should be on his business card, by the way — Chris Carrino decided to keep it to himself.
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22 Mar NYT Article: "Reanimated ‘Junk’ DNA Is Found to Cause Disease"

By GINA KOLATA Published: August 19, 2010
The human genome is riddled with dead genes, fossils of a sort, dating back hundreds of thousands of years the genome's equivalent of an attic full of broken and useless junk.
Some of those genes, surprised geneticists reported Thursday, can rise from the dead like zombies, waking up to cause one of the most common forms of muscular dystrophy. This is the first time, geneticists say, that they have seen a dead gene come back to life and cause a disease.
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