1 month ago

The Chris Carrino Foundation for FSHD - The Chris Carrino Foundation for FSHD 8th Annual Gala

Hi Everyone.

I recently had the pleasure of attending the FSHD International Research Conference

First, there is real progress being made towards a treatment and cure for this disease.
Secondly, I'm confident that funding from the Chris Carrino Foundation for FSHD is going to the right people and it's making an impact on FSHD research.
And finally, I'm filled with gratitude for these people and everyone who has made their work possible. Whether you are doing the work, or funding the work, you are going to change people's lives!

With that being said, it also left me feeling the weight of all the funding that is needed. There is an urgency in the field right now. We must continue this work.

Attending and contributing to our 8th Annual Gala is a wonderful way to support us and the work of these great people. I hope to see you on July 19th and express my gratitude in person.

All the best...

- CC

https://chriscarrinofoundation.givezooks.com/events/8th-annual-gala ... See more

http://www.chriscarrinofoundation.org Presented By   Our 8th Annual Gala at the beautiful Russo's ... See more

2 months ago

Acceleron Receives FDA Fast Track Designation for ACE-083 in Facioscapulohumeral Muscular Dystrophy (FSHD)

Some hopeful news ... See more

Acceleron Pharma Inc. (NASDAQ:XLRN), a leading biopharmaceutical company in the discovery and ... See more

2 months ago

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