02 Jan Beyond the Paint: Call for a Cure (VIDEO)
https://youtu.be/LXr1L4NOmos ...
30 Nov Justin Cohen: Living with FSHD, and efforting to find a cure
Justin Cohen is a remarkable young researcher, living with FSHD, and efforting to find a cure for the disease. The Carrino Foundation is proud to make his work possible. Here is Justin’s story, in his own words. ...
12 May FSHD News: Bonita’s Ray wins scholastic essay contest
Expressing his hardships and triumphs while battling facioscapulohumeral muscular dystrophy, Bonita eighth-grader Sam Ray is one of the winners of the national Scholastic’s annual essay contest.The annual essay, “Breaking Barriers: In Sports, In Life,” was created by Scholastic and Major Baseball League in honor of...
06 May ‘You’re not going to quit’: One step at a time, Nets radio voice Chris Carrino continues to walk tall
There are approximately 15 steps that Chris Carrino will need to navigate in order to reach his broadcast position inside Wells Fargo Center. It may not seem all that daunting, but a small flight of stairs is physically challenging and potentially dangerous for someone living...
15 Jan SAVE THE DATE: 9th Annual Foundation Dinner Dance
Be sure to mark your calendars now! Our ninth annual dinner dance will take place on Thursday, July 18, 2019, at Russo's on the Bay in Howard Beach, NY. Details and ticket information will be available soon. Hope to see you there!...
26 Jan NEWS: Facio selects first series of potential drug development candidates
Facio Therapies announced today that it has selected its first series of potential FSHD drug development candidates. This series comprises several families of small-molecule compounds that are associated with a narrowly defined target class. Neither the compound families nor the target class have ever been...
25 Nov FSHD NEWS: New drug targets for a form of muscular dystrophy
Article originally appeared on sciencedaily.com, November 7, 2017. In a recent paper published in the journal Skeletal Muscle, a Saint Louis University researcher reports success in identifying new drug targets that potentially could slow or halt the progression of a form muscular dystrophy, an illness characterized by progressive muscle...
25 Nov FSHD NEWS: Resolaris Improved Muscle Strength of Nearly Two-thirds of FSHD Patients, Phase 1/2 Trial Shows
Article originally appeared on musculardystrophynews.com, October 10, 2017. Resolaris (ATYR1940) improved the muscle strength of nearly two-thirds of adolescents and young adults with early-onset facioscapulohumeral muscular dystrophy (FSHD), according to final results of a Phase 1/2 clinical trial. The therapy’s maker, aTyr Pharma, presented the findings at the 22nd International Annual Congress of the World Muscle Society...
07 Aug VIDEO: NBC Sports Desk Report on C2C4FSHD
Bruce Beck of NBC 4 provides coverage of the C2C4FSHD bike tour....
30 Jul VIDEO: Cyclists Cross The Country For A Cure For Muscular Dystrophy
Frank Carbone’s energy is infectious. Starting in Seattle and for the better part of two months, he led a group of cyclists across the country. CBS2’s Steve Overmyer caught up with him during a two-minute pit stop in Fort Lee before entering their final leg...