The Chris Carrino Foundation for FSHD

13 Mar BUY TICKETS: The 8th Annual Chris Carrino Foundation for FSHD Gala

Posted at 00:00h in Foundation News, Upcoming Events

[vc_row row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern" css_animation="" css=".vc_custom_1520799889753{padding-top: 40px !important;padding-bottom: 40px !important;}"][vc_column][vc_column_text] The 8th Chris Carrino Foundation for FSHD Gala Presented by: Thursday, July 19, 2018 Russo's On The Bay 162-45 Cross Bay Blvd Howard Beach, NY 11414 Cocktail hour from 6:00 to 7:30 pm / Dinner at 7:30 pm Mega Raffle...

26 Jan NEWS: Facio selects first series of potential drug development candidates

Posted at 05:43h in FSHD News, News

Facio Therapies announced today that it has selected its first series of potential FSHD drug development candidates. This series comprises several families of small-molecule compounds that are associated with a narrowly defined target class. Neither the compound families nor the target class have ever been...

25 Nov FSHD NEWS: New drug targets for a form of muscular dystrophy

Posted at 04:13h in FSHD News, News

Article originally appeared on sciencedaily.com, November 7, 2017. In a recent paper published in the journal Skeletal Muscle, a Saint Louis University researcher reports success in identifying new drug targets that potentially could slow or halt the progression of a form muscular dystrophy, an illness characterized by progressive muscle...

25 Nov FSHD NEWS: Resolaris Improved Muscle Strength of Nearly Two-thirds of FSHD Patients, Phase 1/2 Trial Shows

Posted at 04:04h in FSHD News, News

Article originally appeared on musculardystrophynews.com, October 10, 2017. Resolaris (ATYR1940) improved the muscle strength of nearly two-thirds of adolescents and young adults with early-onset facioscapulohumeral muscular dystrophy (FSHD), according to final results of a Phase 1/2 clinical trial. The therapy’s maker, aTyr Pharma, presented the findings at the 22nd International Annual Congress of the World Muscle Society...

07 Aug VIDEO: NBC Sports Desk Report on C2C4FSHD

Posted at 03:55h in Foundation News

Bruce Beck of NBC 4 provides coverage of the C2C4FSHD bike tour....

30 Jul VIDEO: Cyclists Cross The Country For A Cure For Muscular Dystrophy

Posted at 04:31h in Foundation News, News

Frank Carbone’s energy is infectious. Starting in Seattle and for the better part of two months, he led a group of cyclists across the country. CBS2’s Steve Overmyer caught up with him during a two-minute pit stop in Fort Lee before entering their final leg...

30 Jul VIDEO: Bike Journey Raises Money, Awareness For Muscular Dystrophy

Posted at 04:23h in Foundation News, News

A 4,200-mile journey through 15 states that began in Seattle in May came to an end in Brooklyn Wednesday afternoon, as cyclists pedaled their way to the Barclays Center and celebrated the funding and awareness they raised for facioscapulohumeral muscular dystrophy....

17 Jun June 20th is World FSHD Day

Posted at 17:41h in Foundation News, FSHD News

Post by Chris Carrino June 20th is World FSHD Day. A day of awareness for FSHD, to show we are united for a cure. However, for those of us affected by this disease, June 20th is simply known as - Tuesday. There isn’t a moment of every day that...

15 Jun AUDIO: FSH Society Radio live 2A- Chris Carrino, voice of the Brooklyn Nets & FSHD

Posted at 04:27h in Foundation News

Fastfoward to the 18:45 minute mark to hear Chris' interview....

24 May Nets Broadcaster Is A Mentor With A Mission

Posted at 05:27h in Foundation News

This article originally appeared on app.com Jerry Carino , @njhoopshaven Published 5:02 a.m. ET May 18, 2017 | Updated 4:20 p.m. ET May 20, 2017 As the new co-director of a highly successful sports broadcasting camp for teens, Marlboro's Chris Carrino draws on...