UMMS Jones Lab 4_resizedThe Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.  FSHD is a degenerative muscle wasting disease for which there currently is no treatment or cure.  Through its efforts, the Chris Carrino Foundation for FSHD encourages, promotes and funds scientific and clinical research of FSHD.  We conduct fundraising events and solicit grants and contributions from individuals, private foundations and others, for the purpose of sponsoring research to help advance the study and understanding of FSHD. Our goal is to assist in identifying a treatment and cure for the disease.  We disseminate information about FSHD, encourage additional public support and raise awareness of the necessity for more research funding.

OUR MISSION

 

The Chris Carrino Foundation for FSHD is a non-profit organization working towards improving the lives of those affected by Facioscapulohumeral Dystrophy (FSHD) by funding specifically focused scientific research.

Learn More

GET INVOLVED

 

The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate all of your donations and support!

Ways To Help

SUBSCRIBE

 

Sign up today to receive our email newsletter which will keep you up to date on all that’s new in the field of FSHD.